If you are interested in Volunteering for one of our upcoming events please email Chris at scarpettachristina@yahoo.com to receive a volunteer form

We are always looking for ways to spread the word about Batten Disease and the need for a Cure.  We were lucky to get a diagnosis in 18 months. It typically takes 4 to 7 years.  If you would like to help get the word out please contact Chris Scarpetta at 815-977-0082 or by email scarpettachristina@yahoo.com 

Since Brocks diagnosis in 2015, there has been research and clinical trials done for gene therapy.  Known to stop the progression of the disease. Also enzyme replacement treatments , are known to slow or halt the progression of symptoms .  For more information, please visit the websites below. 

www.sanfordresearch.org     

www.bdsra.org 

 

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AWARENESS

RESEARCH

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Cowboy Brock's Cause for a Cure
C/O The Giving Back Fund
5757 W. Century Blvd., Ste. 410
Los Angeles, CA 90045

COWBOY BROCK'S CAUSE FOR A CURE IS A FISCALLY SPONSORED PROJECT AT THE GIVING BACK FUND INC., TAX ID 04-3367888, A NOT-FOR-PROFIT CORPORATION WITH FEDERAL TAX-EXEMPT STATUS FROM THE IRS UNDER SECTION 501(C)(3).